ALS Bytes

For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS. Although many of the difficulties, thoughts and complications addressed here are based on my personal experience, I’m including the experiences of other PALS (People with ALS) I’ve known personally, online or otherwise, for a more accurate portrayal of the typical PALS. While this is not necessarily my story of life with ALS, but  it could be yours, in the blink of an eye…or, the twitch of a muscle.

Not much time to write, but it’s been a good day so far. Movie night, going to see Iron Man 2. Feeling so…content lately with just being online, from the time I get up to the time I can’t resist laughing for no reason all other than that’s what happens when I’m exhausted. Some days I’m able to get something constructive done…besides facebook and catching up on Google Reader.

Cindy wants to contribute so bad, monetarily. She’s never had to rely on someone else for income, always worked. Talking about a kind of small-scale catering, cook-to-order service. Could be interesting, we’ll see. Maura’s doing a multimedia presentation on ALS for her computer class, should be fun. I LOVE YOU MAURA!