January 2010
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“Is prayer your steering wheel or your spare tire?”
by Corrie Ten Boom
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iGive...do you??

I’ve found a simple way to raise money, every time I shop online or search the web, and I think you should check it out!

I’m using iGive.com to raise money for The ALS Association of NC, every time I shop online at any of their 774 participating stores. And when I search the web through iSearchiGive.com [...]

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Live for the Moment

Looking forward to this new show on CBS tonight at 9:00. “Live for the Moment”, hosted by Jeff Probst of “Survivor”. Hopefully they’ll put enough emphasis on the real-life cruelty that ALS puts on about 30,000 American families at any given time to finally make a difference!

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Sleep Apnea | EasyLife

Sleep Apnea | EasyLife. Philips Respironics has just introduced this new CPAP/BiPAP mask that they claim “readily adapts to facial contours to create an instant and self-adjusting seal, nearly eliminating the need for nose bridge and forehead pad adjustments“. That’s an uncomfortable pill to swallow Philips, but I’d be perfectly willing to review the product [...]

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THANK YOU LORD!!!

It’s been one of those weeks. Started feeling a little throat irritation Tuesday night. Not too bothersome Wednesday, but by the time Thursday morning came, and time for my trip to the VA for a pulmonary function test, my throat was inflamed, which made me think it was my lungs, so I began thinking it [...]

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For the moment...

This upcoming new show portrays normal people with a reason to “Live for the Moment”. This one has ALS…but how can we adopt such an attitude without having received such a disturbing wake-up call as is a most-feared diagnosis?

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A New Beginning

Just as the days begin to grow longer, as sure as the morning dew on a cool Carolina morning, hope springs forth from this amazing new love sent from the heavens in Cindy, my new wife of all of 21 hours now. I shall be eternally greatful, my cup doth overflow with all the blessing [...]

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Sunday morning stroll...

…through the ALS jungle.

Why is my tail-bone hurting? Less cushion back there? Need more air in my roho cushion? Where’s the morning headache coming from? Is the bipap no longer sufficient for proper respiration? (GULP!) How long will I be able to effectively use my chair’s foot control without putting anymore holes or marks on [...]

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Because I have only limited functional use of one hand, I use Dasher, as shown here, to type without a keyboard, only a mouse. Great for loss of use of one hand, even if there's no fine motor control in your better hand. Also adaptable for eyegaze and head-mouse use. Give it a try! I supplement Dasher with an on-screen keyboard called Skeleton Key, created by a PALS, Dov Wisebrod.



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