September 2010
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“Whoever is happy will make others happy too.”
by Anne Frank
 Brainyquote
Use OpenDNS
Suicide Squirrel Alert Level

ALS Glossary

AAC
Augmentative Alternative Communication
ADA
Americans with Disabilities Act
ALS
Amyotrophic Lateral Sclerosis, also known as MND, Motor Neuron Disease or Lou Gehrig’s disease.
ALSA
ALS Association (US)
ALS TDI
ALS Therapy Development Institute
AT
Assistive or Adaptive Technology
BiPAP
Bilateral Positive Air Pressure, a type of external ventilation.
CALS
Caregiver for a person with ALS (PALS)
CPAP
Constant Positive Air Pressure, a type of external ventilation.
DME
Durable Medical Equipment
FRS
Functional Rating Scale
FVC
Forced Vital Capacity, respiratory
PALS
Person or Patient with ALS.
PEG
Percutaneous Endoscopic Gastrostomy, a type of feeding tube.
TTS
Text-To-Speech
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Because I have only limited functional use of one hand, I use Dasher, as shown here, to type without a keyboard, only a mouse. Great for loss of use of one hand, even if there's no fine motor control in your better hand. Also adaptable for eyegaze and head-mouse use. Give it a try! I supplement Dasher with an on-screen keyboard called Skeleton Key, created by a PALS, Dov Wisebrod.



Wolfgang's Vault