September 2010
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“Although the world is full of suffering, it is full also of the overcoming of it. My optimism, then, does not rest on the absence of evil, but on a glad belief in the preponderance of good and a willing effort always to cooperate with the good, that it may prevail.”
by Helen Keller (1880 – 1968) U.S. deafblind author and activist
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Advocacy

4ALS Awareness MLB has teamed up with four leading ALS organizations to raise awareness and funds to fight this deadly disease. They are sharing their latest stories, research and support here.
ALS Advocacy Take action in the fight against Lou Gehrig's Disease. Affect legislation. Make news. Spread the word. Raise Cain. Build awareness. Exercise democracy.
ALSForums Members Map Google map showing locations of participating members of ALSForums.com.
ALS Matters The focus of this site is to provide a means for members of the ALS community to communicate and share information in the way which best suits them.
ALSA Advocacy Action Center You can make a big difference in just 5 minutes. That’s all it will take to learn the issues and send a letter to Congress. The actions of our government have an enormous impact on people with ALS, their caregivers and families so please join our advocacy efforts.
Sarah’s Story I was diagnosed with motor neurone disease in April 2000 at the age of 34, explains Sarah Ezekiel, the real Sarah behind ‘Sarah’s Story’. I was seven months pregnant with my second child and didn’t know anything about MND. I soon started to experience rapid loss of motor skills in all of my limbs as well as deterioration of my speech.
Stealing Pieces We are a group of individuals who are compassionate, committed, and relentless in the fight to defeat ALS. We are family members and friends who have seen the effects of a deadly disease and want to inspire you to make a difference.
Where Are The Cures.org Where Are The Cures.org is a patient advocacy initiative of the Myelin Repair Foundation. The Myelin Repair Foundation (MRF) is a non-profit research organization committed to accelerating the pace of medical research and drug development.
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Because I have only limited functional use of one hand, I use Dasher, as shown here, to type without a keyboard, only a mouse. Great for loss of use of one hand, even if there's no fine motor control in your better hand. Also adaptable for eyegaze and head-mouse use. Give it a try! I supplement Dasher with an on-screen keyboard called Skeleton Key, created by a PALS, Dov Wisebrod.



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