| Adventures of ALS Boy, The | In his days prior to wearing the cape and cowl of the Amazing, Inspiring and Adventurous ALS Boy, Jason Picetti’s not-so-secret identities included weekend warrior rock star, enthusiastic and motivating middle school math teacher, and all-around decent guy. |
| ALS Chronicle | This blog is here to chronicle the story of my wife’s and my family’s battle with ALS – Lou Gehrig’s Disease. Symptoms, Diagnosis, Paths we have followed and experiences we have had will all be addressed. |
| ALS Misery | ALS is about Loss. Losing one’s body, mobility, independence, PRIVACY, communication, integrity, favorite foods, friends, husbands/wives, dignity, and on and on…. |
| ALS or Lou Gehrigs disease | I would like to relate my experience with this disease, so that you have some idea what to expect if you have this disease, and if you do not, so that you will have a better understanding of it. My personal experiences are just that, personal, and others may and will have different experiences. |
| ALS Spread the Word | J.M.C. (Doc)’s blog, Blogger. |
| ALS Sucks | Living with ALS |
| ALS TDI Network, The | Welcome to the ALS TDI Network! Each of the unique web pages that make up this Network have been built by members of the ALS community with the goal of sharing not only their own story, but to connect with others committed to supporting research into a treatment that will slow and stop this disease. |
| ALSwarriorohio | My name is Shawn Schulte. I’m a 35 year old lifestyle cyclist, winsome visual artist, and commited martial artist. I spent 17 years as a commercial fisherman in Alaska and have spent the bulk of my off season working at Staufs Coffee Roasters in Grandview, OH, where I am previleged to be the manager. |
Altered. |
My purpose in writing this blog is to share what God is teaching me in my battle with ALS. In a revealing and honest way. My desire is to constantly be transformed by Him. Changed. ALTERED. |
| Beat A.L.S. | Beat A.L.S. is my attempt to relate to the world that there is hope after a diagnosis of amyotrophic lateral sclerosis. No, there is no cure. And yes, the progression is relentless. But…. |
| Brigance Brigade, The | Longtime Baltimore football fixture O.J. Brigance is currently fighting amyotrophic lateral sclerosis (ALS), and he wants you to join the cause against this debilitating illness through his foundation, Brigance’s Brigade. |
| Carey’s Hope | On 5/12/2010 the Carey’s Hope website was launched to promote ALS awareness and share news, events and updates on Carey’s battle with this disease. It will allow supporters like you to make donations directly to the Hall Family for medical expenses and leave a personal message for them in our website Guestbook. |
| Carlamuses |
Carla is a mother, humorist and writer. She writes about life, art, politics and the things that scare her. |
| Catfish Blog, The | Included in this site is valuable information about ALS, patient and caregiver tips, and events, news and volunteer opportunities that are beneficial to the fight against this disease. |
| Claudia’s Family | Follow Claudia’s blog on her life as a mom with ALS raising her autistic son. |
| DFT ALS | This BLOG is dedicated to my late husband Bill Lichtig, who lost his battle with familial ALS on Aug. 10, 2005, and the many patients, families, caregivers and friends that I am privileged to know. |
| Dr. Mark Cato, Dying to Live | Mark is 75 years old (in August 2009), married to Alice (70) , since 1963 and has two children, Miles (45) married to Kimberly and Chloe (40) married to Karl. |
| Friends4Eric | Opinions, research news, and information from a person coping with Amyotrophic Lateral Sclerosis (ALS, Lou Gehrigs Disease). See www.friends4eric.org for more information. |
| George Goodwin’s ALS Independence | This site is dedicated to the many PALS living with this terrible disease as well as those who have lost their battles. It is also dedicated to the CALS who suffer along with their loved ones. |
| Heather’s Army | I wanted to start a blog for people to read and my friends to see what is going on with me and in my life with….ALS ( Lou Gehrig’s Disease)….. |
| Hope for Joy | It has been a year since my diagnoses of ALS so I thought an update was appropriate. It has been a busy, fun, challenging, scary, loving and learning kind of year. |
| Ken’s Journey | Welcome to Ken’s Journey, a website I have created for friends and family to see how I am doing, read the latest published stories I have written, and learn more about this fatal disease. |
| Keri B. Still |
This website is dedicated to honoring the memory of a lovely young woman… a daughter, wife, mother, and beloved sister to the world in which she excelled. |
| KissMyALS.com | The topics Anne Marie Schlekeway has broached in her young blog, KissMyALS.com, go way beyond where mere mortals would even dare tread. Her Nov. 22 entry is about pooping: “To speed the process while on the pot — lift both arms over your head. I don’t know why this works but it does every time!” |
| Kramer Family |
Website of former US Army Ranger Lee Kramer, founder of the PALS “Over 5″ club. |
| Life Despite ALS | The purpose of “Life Despite ALS” is to raise awareness about ALS and share about how we continue living our lives despite the fact that my husband, Ken, has ALS. |
| Life with ALS | The purpose of this web site is to share my experiences and my journey living with ALS, it includes things that I have learned, what has been helpful to me and advice on how to live. |
| Living Jesusly | I intend to write on a regular basis about the year of living like Jesus and my ongoing journey with ALS. So I guess you should welcome me to the blogasphere-whatever that is! |
| Marcie’s journey with ALS and my journey with her and others. | This is a little about my daughter marcie and her life as she lives with ALS and what I do to others as our friends have given to us.”>Marcie’s journey with ALS and my journey with her and others. |
| Never Tell Me the Odds | For those of you that don’t know, I was diagnosed with ALS in March 2007. After two more opinions, the diagnosis was confirmed in the fall 2007 at age 39. This coming August (2010) I will have been married for seven years to an incredible wife, who has supported me throughout. During the course of our marriage we have been lucky to have two wonderful, amazing daughters. Sydney, will be 5 in November. Emily, will turn 2 1/2 in August. Currently, we reside in New Jersey with our Beagle, Trixie. |
| Nishant’s Chronicles of Hope | This blog is about my fight with a disease called Amyotrophic lateral sclerosis (also known as ALS or Lou Gehrig’s Disease). |
| Often Awesome | We are the Often Awesome Army. We are a joyful group of family, friends and supporters who have joined together to help Tim fight ALS. We donate our time, our artwork, our music, our laughter, our money, our compassion and our enthusiasm to help Tim. |
| Our Light Affliction | “For our light affliction, which is but for a moment, worketh for us a far more exceeding and eternal weight of glory.” |
| Quadbliss.com | Please use this site to help explain ALS (Lou Gehrig’s disease or MND). I hope by browsing these pages, those affected by this disease will realize that it does not have to be a purely negative experience. I will also use this space to share that which overflows my cup in the form of digital paintings and spiritual/philosophical thoughts. For those not touched by ALS, I hope this website inspires you to live life with a purpose. |
| Raising ALS Awareness, My Life With ALS | As you can tell from my story my mom has ALS and I am trying to raise awareness so that one day soon we can find a cure!! |
| Rambling Man of ALS | Rambling Man of ALS |
| Richard Kelley’s Journal | Richard Kelley’s Journal |
| Robin’s Journey with ALS | Before I was diagnosed with ALS things were coming together for me. I was enjoying life, I was running five miles everyday and working out regular. I also was coaching special Olympics power lifting. |
| The Rumi Music Blog | Despite his disability of being wheelchair-bound with ALS, Lee has managed to create music using a unique, painstaking method. Utilizing a computer and music notation software he is able to compose using one finger and a touch pad. |
| Sarahville | Diagnosed with Motor Neurone Disease/ALS in April 2000….Welcome to My World! |
| Steven Shackel’s ALS/MND Website | This site explores if a combination of existing medications and supplements, plus lifestyle and dietary changes may slow the progress of neurodegeneration in Amyotrophic Lateral Sclerosis/Motor Neurone Disease (ALS/MND). |
| Together Forever | Then we sat on the edge of the earth, with our feet dangling over the side and MARVELLED that we had found each other! Not even ALS/MND (Amyotrophic Lateral Sclerosis or Motor Neurone Disease) or Lou Gehrig’s Disease will keep us apart! |
| Wayne T. Lampe’s Bible Study | Helping Families Cope with ALS by or difficult times with Spiritual Encouragement with Biblical Truth & Answers. God loves you, He is in Control and has a plan for your life. |
| Wheelchair Diffusion Blog | USATechGuide’s Blog |
| Adventures of ALS Boy, The | In his days prior to wearing the cape and cowl of the Amazing, Inspiring and Adventurous ALS Boy, Jason Picetti’s not-so-secret identities included weekend warrior rock star, enthusiastic and motivating middle school math teacher, and all-around decent guy. |
| ALS Chronicle | This blog is here to chronicle the story of my wife’s and my family’s battle with ALS – Lou Gehrig’s Disease. Symptoms, Diagnosis, Paths we have followed and experiences we have had will all be addressed. |
| ALS Misery | ALS is about Loss. Losing one’s body, mobility, independence, PRIVACY, communication, integrity, favorite foods, friends, husbands/wives, dignity, and on and on…. |
| ALS or Lou Gehrigs disease | I would like to relate my experience with this disease, so that you have some idea what to expect if you have this disease, and if you do not, so that you will have a better understanding of it. My personal experiences are just that, personal, and others may and will have different experiences. |
| ALS Spread the Word | J.M.C. (Doc)’s blog, Blogger. |
| ALS Sucks | Living with ALS |
| ALS TDI Network, The | Welcome to the ALS TDI Network! Each of the unique web pages that make up this Network have been built by members of the ALS community with the goal of sharing not only their own story, but to connect with others committed to supporting research into a treatment that will slow and stop this disease. |
| ALSwarriorohio | My name is Shawn Schulte. I’m a 35 year old lifestyle cyclist, winsome visual artist, and commited martial artist. I spent 17 years as a commercial fisherman in Alaska and have spent the bulk of my off season working at Staufs Coffee Roasters in Grandview, OH, where I am previleged to be the manager. |
| Altered. |
My purpose in writing this blog is to share what God is teaching me in my battle with ALS. In a revealing and honest way. My desire is to constantly be transformed by Him. Changed. ALTERED. |
| askaboutaimee.com | Aimee is the mother of Nicholas (age 13), Emily (10) and Zachary (6) pictured below. She loves them dearly. She kisses their boo-boos, soothes their hurt feelings, hugs them tightly when they’ve had bad dreams. She would do anything—endure anything—to spare them pain. And she aches for them, knowing there is one pain she can’t prevent. |
| Beat A.L.S. | Beat A.L.S. is my attempt to relate to the world that there is hope after a diagnosis of amyotrophic lateral sclerosis. No, there is no cure. And yes, the progression is relentless. But…. |
| Brigance Brigade, The | Longtime Baltimore football fixture O.J. Brigance is currently fighting amyotrophic lateral sclerosis (ALS), and he wants you to join the cause against this debilitating illness through his foundation, Brigance’s Brigade. |
| Carey’s Hope | On 5/12/2010 the Carey’s Hope website was launched to promote ALS awareness and share news, events and updates on Carey’s battle with this disease. It will allow supporters like you to make donations directly to the Hall Family for medical expenses and leave a personal message for them in our website Guestbook. |
| Carlamuses |
Carla is a mother, humorist and writer. She writes about life, art, politics and the things that scare her. |
| Catfish Blog, The | Included in this site is valuable information about ALS, patient and caregiver tips, and events, news and volunteer opportunities that are beneficial to the fight against this disease. |
| Claudia’s Family | Follow Claudia’s blog on her life as a mom with ALS raising her autistic son. |
| DFT ALS | This BLOG is dedicated to my late husband Bill Lichtig, who lost his battle with familial ALS on Aug. 10, 2005, and the many patients, families, caregivers and friends that I am privileged to know. |
| Dr. Mark Cato, Dying to Live | Mark is 75 years old (in August 2009), married to Alice (70) , since 1963 and has two children, Miles (45) married to Kimberly and Chloe (40) married to Karl. |
| Friends4Eric | Opinions, research news, and information from a person coping with Amyotrophic Lateral Sclerosis (ALS, Lou Gehrigs Disease). See www.friends4eric.org for more information. |
| George Goodwin’s ALS Independence | This site is dedicated to the many PALS living with this terrible disease as well as those who have lost their battles. It is also dedicated to the CALS who suffer along with their loved ones. |
| Heather’s Army | I wanted to start a blog for people to read and my friends to see what is going on with me and in my life with….ALS ( Lou Gehrig’s Disease)….. |
| Hope for Joy | It has been a year since my diagnoses of ALS so I thought an update was appropriate. It has been a busy, fun, challenging, scary, loving and learning kind of year. |
| Ken’s Journey | Welcome to Ken’s Journey, a website I have created for friends and family to see how I am doing, read the latest published stories I have written, and learn more about this fatal disease. |
| Keri B. Still |
This website is dedicated to honoring the memory of a lovely young woman… a daughter, wife, mother, and beloved sister to the world in which she excelled. |
| KissMyALS.com | The topics Anne Marie Schlekeway has broached in her young blog, KissMyALS.com, go way beyond where mere mortals would even dare tread. Her Nov. 22 entry is about pooping: “To speed the process while on the pot — lift both arms over your head. I don’t know why this works but it does every time!” |
| Kramer Family |
Website of former US Army Ranger Lee Kramer, founder of the PALS “Over 5″ club. |
| Life Despite ALS | The purpose of “Life Despite ALS” is to raise awareness about ALS and share about how we continue living our lives despite the fact that my husband, Ken, has ALS. |
| Life with ALS | The purpose of this web site is to share my experiences and my journey living with ALS, it includes things that I have learned, what has been helpful to me and advice on how to live. |
| Living Jesusly | I intend to write on a regular basis about the year of living like Jesus and my ongoing journey with ALS. So I guess you should welcome me to the blogasphere-whatever that is! |
| Marcie’s journey with ALS and my journey with her and others. | This is a little about my daughter marcie and her life as she lives with ALS and what I do to others as our friends have given to us.”>Marcie’s journey with ALS and my journey with her and others. |
| Never Tell Me the Odds | For those of you that don’t know, I was diagnosed with ALS in March 2007. After two more opinions, the diagnosis was confirmed in the fall 2007 at age 39. This coming August (2010) I will have been married for seven years to an incredible wife, who has supported me throughout. During the course of our marriage we have been lucky to have two wonderful, amazing daughters. Sydney, will be 5 in November. Emily, will turn 2 1/2 in August. Currently, we reside in New Jersey with our Beagle, Trixie. |
| Nishant’s Chronicles of Hope | This blog is about my fight with a disease called Amyotrophic lateral sclerosis (also known as ALS or Lou Gehrig’s Disease). |
| Often Awesome | We are the Often Awesome Army. We are a joyful group of family, friends and supporters who have joined together to help Tim fight ALS. We donate our time, our artwork, our music, our laughter, our money, our compassion and our enthusiasm to help Tim. |
| Our Light Affliction | “For our light affliction, which is but for a moment, worketh for us a far more exceeding and eternal weight of glory.” |
| Quadbliss.com | Please use this site to help explain ALS (Lou Gehrig’s disease or MND). I hope by browsing these pages, those affected by this disease will realize that it does not have to be a purely negative experience. I will also use this space to share that which overflows my cup in the form of digital paintings and spiritual/philosophical thoughts. For those not touched by ALS, I hope this website inspires you to live life with a purpose. |
| Raising ALS Awareness, My Life With ALS | As you can tell from my story my mom has ALS and I am trying to raise awareness so that one day soon we can find a cure!! |
| Rambling Man of ALS | Rambling Man of ALS |
| Richard Kelley’s Journal | Richard Kelley’s Journal |
| Robin’s Journey with ALS | Before I was diagnosed with ALS things were coming together for me. I was enjoying life, I was running five miles everyday and working out regular. I also was coaching special Olympics power lifting. |
| The Rumi Music Blog | Despite his disability of being wheelchair-bound with ALS, Lee has managed to create music using a unique, painstaking method. Utilizing a computer and music notation software he is able to compose using one finger and a touch pad. |
| Sarahville | Diagnosed with Motor Neurone Disease/ALS in April 2000….Welcome to My World! |
| Steven Shackel’s ALS/MND Website | This site explores if a combination of existing medications and supplements, plus lifestyle and dietary changes may slow the progress of neurodegeneration in Amyotrophic Lateral Sclerosis/Motor Neurone Disease (ALS/MND). |
| Together Forever | Then we sat on the edge of the earth, with our feet dangling over the side and MARVELLED that we had found each other! Not even ALS/MND (Amyotrophic Lateral Sclerosis or Motor Neurone Disease) or Lou Gehrig’s Disease will keep us apart! |
| Wayne T. Lampe’s Bible Study | Helping Families Cope with ALS by or difficult times with Spiritual Encouragement with Biblical Truth & Answers. God loves you, He is in Control and has a plan for your life. |
| Wheelchair Diffusion Blog | USATechGuide’s Blog |
Because I have only limited functional use of one hand, I use 