September 2010
M T W T F S S
« Aug    
 12345
6789101112
13141516171819
20212223242526
27282930  
   

““Having Lou Gehrig’s Disease sucks, because I hate baseball. I’d much rather have been diagnosed with a basketball disease. Maybe Wilt Chamberlain Disease. That’s the one where you have sex 20,000 times and then you die.””
by Carla Zilbersmith
Use OpenDNS

Level 1 Squirrel Emergency! PANIC!

Resources

ALS Association Resources As a service to the ALS community, we have provided various resources, including publications and videos produced by The Association, other related books, Products/Services to Aid in Daily Living, as well as Informative Links to give visitors the ability
ALS.Needlist.org Review needs posted by people with ALS & their caregivers. Reply to the need as you would a classified ad or craigslist posting. We will connect you with this person so that you can help. We are not an organization & no money passes through our
ALS: From both sides As someone quite amazed to find herself in her 24th year of ALS and still busily, happily, and contentedly engaged in living, I have reached the point where I find myself saying "If I'd known I was going to live this long, I would have taken better care o
ALSA Georgia Resource Guide 104-page resource guide with links, .pdf format
American Academy of Neurology AAN's patients and caregivers website is a comprehensive resource for you and your loved ones on specific neurologic disorders. This site combines important information from such credible sources as the American Academy of Neurology and the National Insti
CaringSpace, The We are here to help. Whether you are a caregiver or a careseeker, our goal is to connect you with assistance that meets your needs. We hope that you join the community and find just what you are looking for. -the CaringSpace team
DailyStrength.org ALS Support Group DailyStrength.org ALS Support Group
Disability.gov Disability.gov is an award-winning federal Web site that contains disability-related resources on programs, services, laws and regulations to help people with disabilities lead full, independent lives.
Ezine Articles, Eldercare EzineArticles.com is a matching service — bringing real-world experts and ezine publishers together. Expert Authors & Writers are able to post their articles to be featured within the site. Our searchable database of hundreds of thousands of quality
Leonard Florence Center for Living In partnership with the Massachusetts Chapter of the ALS Association, the Leonard Florence Center for Living presents America’s only permanent residence dedicated to caring for individuals living with amyotrophic lateral sclerosis, commonly known as ALS o
Living Jesusly Thirty short yet powerful morning and evening reflections offer encouragement, hope, and inspiration to people dealing with a life-threatening illness, and to their family members and caretakers. Here are honest insights and personal stories from a pastor
Lotsa Helping Hands Lotsa Helping Hands was created to support family caregivers and volunteers by empowering their circles of community who are eager to help those in need.
MDA's ALS Caregiver's Guide This book is a rewrite and expansion of MDA’s 1997 publication, When a Loved One Has ALS: A Caregiver’s Guide. That book was revised twice, but after a decade it was clear that a revision wasn’t enough.
MDJunction.com ALS Support Group A community of patients, family members and friends dedicated to dealing with Amyotrophic Lateral Sclerosis, together. Join This Group
Medicare Caregiver's Resource Page Medicare Caregiver's Resource Page
Microsoft HealthVault Whether you travel, have kids, are a caregiver or have a chronic illness, getting the right information to the right person at the right time can be vital. Keep it accessible online—because every minute counts.
Motor Neurone Disease (MND) Association, The The Motor Neurone Disease (MND) Association is the only national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them.
National Institute of Neurological Disorders and Stroke (NINDS) Amyotrophic Lateral Sclerosis Fact Sheet The mission of the National Institute of Neurological Disorders and Stroke is to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.
Pill Identifier Worried about those capsules you found in your teenager's room? Not sure about some of those leftover pills still in the bathroom cabinet? There's a good chance that our Pill Identification Wizard can help you match size, shape, colour… then lead you to
Sittercity Sittercity.com is America's largest and most trusted site for matching parents with local babysitters and nannies as well as dog walkers, senior care providers and tutors, with over a million caregiver profiles nationwide.
Surgeon General's "My Family Health Portrait" The Surgeon General's "My Family Health Portrait" is an internet-based tool that makes it easy for you to record your family health history. The tool is easy to access on the web and simple to fill out. It assembles your information and makes a "pedigree"
Ten Commandments for the Management Of ALS On 12 May 97, Attila inquired about the 10 golden rules on how to manage ALS. I am not sure whether this is the document, but it is one of my favorite pieces because it touches the soul and reflects the insight and caring approach of Dr. Forbes H. Norris,
Turning Points in ALS Yes! The purpose of this web site is to provide stories from PALS (People with ALS) and care givers about turning points in their illness and how they handled these issues so others can find information, help, and encouragement.
VA Watchdog The mission of VA Watchdog dot Org is quite simple… to inform and advise. We provide the latest information about the Department of Veterans' Affairs (VA) and other topics of interest to veterans and their families.
Vain Girl's Guide to ALS, The So you've been diagnosed with ALS…
WrongDiagnosis.com WrongDiagnosis.com provides a free health-information service to help people understand their health better, offering crucial and factual health information that is otherwise difficult to find. The objective of the site is to encourage consumers to be informed and interested in managing their health, and to know what questions to ask their doctors to help ensure they are getting the best healthcare possible.
  • Share/Bookmark


Because I have only limited functional use of one hand, I use Dasher, as shown here, to type without a keyboard, only a mouse. Great for loss of use of one hand, even if there's no fine motor control in your better hand. Also adaptable for eyegaze and head-mouse use. Give it a try! I supplement Dasher with an on-screen keyboard called Skeleton Key, created by a PALS, Dov Wisebrod.



Wolfgang's Vault