AAC/Technology

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AbleTrack Mouse
The AbleTrack is a precision assistive technology trackball for those with limited hand function. No special drivers or software is needed, just plug in and your ready to go!!
Activeclick
ActiveClick Automatically Clicks, Drags Content, and Makes you Stretch to Help Prevent RSI
ATS - Assistive Technology Solutions
Distributors of the EzCOMM D1200 AAC device and The Grid 2 software solution
Bilila.com
Located in L.A., Bili Inc specializes in innovative computer input devices - foot mouse and page turner, which have wide applications - from reducing carpal tunnel syndrome to speeding up computer work; from turning music score (hands free!) to avoiding contamination. We strive to make life easier and better.
Calling Dr. Larsen
This blog accompanies a quarterly column, Computer Corner, found in Paraplegia News (PN); published by the Paralyzed Veterans of America (PVA). The column and this blog focus on the intersection of technology and people living with mobility impairments.
Click-n-Type On-screen Keyboard
Click-N-Type is an on-screen virtual keyboard designed for anyone with a disability that prevents him or her from typing on a physical computer keyboard.
Dynavox
Advancing human expression and learning
EnableMart
EnableMart is evolving. This year, 2008 marks the eighth anniversary of EnableMart as home to the greatest and best-known assistive technology products in the world. We are pleased to announce that EnableMart now operates under it's new parent organization, Manufacturer's Resource Network (www.MRN.com). We are thrilled about this step forward and anticipate great things to come as a result of our latest endeavor to enhance your EnableMart shopping experience.
Enabling Devices
Enabling Devices is a company dedicated to developing affordable learning and assistive devices to help people of all ages with disabling conditions.
Etriloquist Text-to-speech software
E-triloquist is a PC-based communication aid for a speech impaired person. It serves as an electronic voice for those who can't speak on their own.
Infogrip
Infogrip, Inc. was founded in 1986, with a mission to develop and market products that provide people with a healthier and more productive way to interact with computers.
Kinesis Corp
Computer ergonomics, foot mouse.
LightWriter
A dedicated conversation/communication aid
NoHands Mouse
The NoHands Mouse™ is a foot operated mouse that consists of two separate pedals. One pedal operates the pointer, while the other is used for button clicking. By default, a heel-click engages the right mouse button, while a toe-click engages the left mouse button.
Origin Instruments
Online Shopping from Origin Instruments Corporation
Point-n-click Virtual Mouse
Point-N-Click is a FREE stand-alone on-screen virtual mouse designed for anyone with a disability that makes it difficult or impossible to click a physical computer mouse. As long as they can move a mouse, trackball or other pointing device, they can send mouse clicks to virtually any Windows application or DOS application that can run within a window and even many that are full screen
Sensory Software International Ltd
We create software solutions to help disabled people do things that everyone else takes for granted.
Tobii
World leader in eye tracking and eye control
"Total Access" Virtual On-screen Keyboard by MiloSoft
With this on-screen keyboard, you can use your mouse to type in any text environment, including chat, email and word processing programs.
Words-Plus
Communication aids and computer access for the disabled

Accessible Travel

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Abletotravel
ABLE to Travel provides knowledgeable travel agents that have dealt with all types of issues that a traveler using a wheelchair or who has limited mobility may encounter during his or her trip, including accessible transportation to and from the airport, stowage of wheelchairs or other mobility equipment on board an aircraft, accessible hotel accommodations, and access to medical equipment.
Global Access News
Also known as the "Disabled Travel Network," this rather basic site serves as a sounding board for disabled travelers to share good and bad experiences.
Access-able
Access-able is the brainchild of a Colorado based husband-and-wife team who decided they wanted to create a resource to assist travelers with all types of disabilities (mobility included).
Disabilitytravel.com
Launched by a company called Accessible Journeys, this site focuses on arranging wheelchair-accessible group travel packages.
Flying-with-disability.org
Launched initially with the stated purpose of serving as an open forum between the airline industry and disabled travelers, this site now provides a wealth of information and advice to make the journey more enjoyable.
Emerging Horizons
This is the virtual counterpart to Emerging Horizons magazine, which focuses solely on accessible travel. While basic information is available to all Web site visitors, full online access to the current issue and archived issues of the magazine is reserved for subscribers (available at the Web site for $17 per year).
ClinicalTrialTravel.org
Charitable medical air transportation and housing arrangements for clinical trial patients and their families through National Patient Travel Center and the National Association of Hospital Hospitality Houses.
Hospice Angel Flight
The mission and purpose of Hospice Angel Flight is "...to ensure that no financially-needy senior citizen or hospice patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical air transportation."
The Society for Accessible Travel & Hospitality (SATH)
Founded in 1976, is an educational nonprofit membership organization whose mission is to raise awareness of the needs of all travelers with disabilities, remove physical and attitudinal barriers to free access and expand travel opportunities in the United States and abroad. Members include travel professionals, consumers with disabilities and other individuals and corporations who support our mission.



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Advocacy

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ALSA Advocacy Action Center
You can make a big difference in just 5 minutes. That's all it will take to learn the issues and send a letter to Congress. The actions of our government have an enormous impact on people with ALS, their caregivers and families so please join our advocacy efforts. Together we can make a difference!
ALS Advocacy Blogspot
This site provides news updates, comments, and ideas related to ALS advocacy and awareness-building.
ALS Matters
ALSMatters is dedicated to raising awareness and educating the public on amyotrophic lateral sclerosis. Focusing the ALS community consisting of patients, caregivers, family, friends and others touched by the disease on specific targets in a coordinated fashion ALSMatters will utilize community input to decide upon both desired goals and approaches. A steering committee consisting of community members will finalize, format and distribute material to ensure that any desired message is consistent and easy to deliver. This will be done at all times in a manner which is respectful to both the intended recipient and the ALS community as a whole.


Together we're better - ALS Advocacy Support Community

DME
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CPAP.com
John Goodman owns and operates what is likely the largest private sleep disorder treatment business in the United States. With over a decade of sleep treatment and diagnostic experience, along with twenty five years of management, customer service, manufacturing, and engineering experience, John still needed help from his then 17 year old son to start and run a sleep treatment internet business.
Sleep Zone CPAP Products (Australia)
Fischer Agencies established 1994, operates as an independent respiratory product supplier that offers our customers a wide choice of CPAP machines, humidifiers and CPAP accessories, all from leading manufacturers. Our service base is located in Goulburn, South Eastern NSW, which places our business in the ideal location for the unique service.
Toto Washlet
The Toto Washlet is a bidet-style toilet seat, adaptable to most any standard commode. It features, depending on the model, a thermostatically-controlled seat warmer, adjustable water pressure, temperature and spray angle, as well as choice of pulsating or variable spray, and temperature-controlled blow dryer.


Forums/Chat
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ALS Forums
The ALS forum is an all-volunteer driven resource provided free of charge to help anyone directly or indirectly affected by ALS and MND (also known as Lou Gehrig's disease).
ALS TDI Forum
The purpose of this forum is to exchange information about ALS, scientific advances in ALS, and treatments for ALS.
CareCure Community
CareCure has over 70 forums where we discuss everything from Life to Legislation & Advocacy, from Sports and Travel to Pain, from Computers to Politics. We discuss it all! Please come join us!
CPAPTalk.com CPAP Forum
This community offers over 31,000 registered members whose combined knowledge equals years and years of first hand Sleep Apnea experience.
Disaboom ALS Community
Disaboom.com was founded by Dr. J. Glen House, a physician specializing in physical medicine and rehabilitation who is also a quadriplegic. His firsthand knowledge of the challenges faced by individuals with disabilities and those whose lives they touch has driven the Disaboom.com mission: to create the first comprehensive, evolving source of information, insight, and personal engagement for the disability community.
Inspire ALS Advocacy Support Community

The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.
Living with ALS Yahoo group
An avenue for persons living with ALS and their caregivers to communicate with the ALS community immediately, to share information, ideas, support and fellowship.
Build UK Chat Forums
Committed to providing a site that is safe for everyone affected by motor neurone disease (MND).
Neurotalk ALS Forum
Welcome to NeuroTalk Communities, a secure, reliable support community for people with ALS
Patientslikeme forum
Imagine knowing every medication, supplement, or device used to treat your disease. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. Patients share their treatments and outcomes not just to help themselves, but to help others. Become part of making a difference for everyone with ALS today.
The ALS Advocacy Support Community
The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration. The ALS Advocacy Support Community is sponsored by The ALS Association in partnership with Inspire.
Media

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Hard Times, Living in the Shadows, Calm Before the Storm by Sheila Tarter
Set in the notoriously poor Appalachian region of Kentucky, this story chronicles the life of Sheila and her seven siblings as they experience one tragedy after another. After her coal mining father passes away at an early age, Sheila and her family struggle to survive under the direction of a mother who can often provide little more than beans and cornbread for long stretches of time. As the family weathers tragedy after tragedy, the siblings believe they have seen it all until Sheila must face the most difficult trial of all, Lou Gehrig’s disease. Experience the true meaning of what it means to struggle and triumph as a family in this tale of how one group of siblings must come of age in the grip of poverty.
Medicare Hospice Coverage Determination for ALS
Medicare Local Coverage Database L276
Going Beyond Diagnosis®: Revised HOSPICE ALS Local Coverage Determination (LCD)
Medicare Coverage Database Article A46405
New Mobility Magazine
New Mobility encourages the integration of active-lifestyle wheelchair users into mainstream society, while simultaneously reflecting the vibrant world of disability-related arts, media, advocacy and philosophy.
When it Rains, a novel by Martjorie Spoto
When It Rains...Inspired by the loss of a loved one from Lou Gehrig's Disease (Amyotrophic Lateral Sclerosis or ALS). Feature Film and Bestselling novel written by Key West Author, Marjorie Spoto. Soon to be a motion picture film.
Mobility
SpinLife.com, LLC

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Permobil
WELCOME TO THE WORLD´S LEADING MANUFACTOR OF POWER WHEELCHAIRS. For more than 40 years we have built up a unique body of knowledge. Above all we have learned from people with functional disabilities what they need. And that is how we intend to go on, doing our best to give you the best.
PG Drives Technology
PG Drives Technology, formerly known as Penny & Giles Drives Technology, is the world's leading manufacturer of controllers for Wheelchairs and mobility Scooters.
Rollx Vans
From manufacturing to delivery, we work harder to make your life easier. Rollx is the only mini and full-size manufacturer selling new and used wheelchair vans direct to you. If you choose, we'll deliver your finished handicapped accessible van straight to your door. Should problems or questions arise, we're only a phone call away.
USA TechGuide
United Spinal's wheelchair and related equipment reviews
Wheelchair Junkie
Beyond the glossy brochures, consumer hype, and provider pitches, how do you truly know if a prospective power wheelchair model will fit your everyday independent living needs? Mark spells it out in Assessing Demo Power Wheelchairs in Everyday Environments
WheelchairNet
WheelchairNet is a community for people who have a common interest in (or in some cases a passion for) wheelchair technology and its improvement and successful application. WheelchairNet is a virtual community... a community that exists only in "cyber space." Cyberspace is just a way of referring to the Internet. It's a community organized along the lines of a real town. We even have a site map! This virtual town is inhabited, visited and managed by people who have an interest in wheelchairs and how wheelchairs can best serve the needs of people who use them.
Wheelchair University
Wheelchair University is a place for community members who are interested in: * Education related to wheelchairs and their use * Research related to wheelchairs and their use * Standards development and its application * International activities related to wheelchairs * Links to potential funding sources in support of wheelchair research * Links to other related WWW sites
Non-profits
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ALS Association
Fighting on Every Front to Improve Living with ALS™
ALSA - NC - Jim "Catfish" Hunter Chapter
June Thompson founded The ALS Association North Carolina Chapter in 1987 to serve the needs of ALS patients and caregivers. In 2000, the Chapter expanded its services to include South Carolina and became known as the Carolinas’ Chapter. In August of 2002, the Carolinas’ Chapter was renamed the Jim “Catfish” Hunter Chapter to honor a North Carolina hero and to bring further recognition to our cause. In early 2006, a new South Carolina Chapter was formed and again our service area changed. We now provide services for just the state of North Carolina.
ALS-TDI
World's first non-profit biotech built by, and for, ALS patients.Founded in 1999, the largest, most efficient, dedicated ALS lab in the world.
ALS Guardian Angels
A cure is not on the horizon. Someone has to help. Who will it be if not us?
Augie's Quest
In March 2005, Augie was diagnosed with ALS. Later that year, Augie and his wife, Lynne, created the Augie’s Quest initiative in conjunction with MDA. In the first two years, Augie’s Quest has raised over $12 million for ALS research. In addition to Augie’s post as chairman of ALS TDI’s board, he and Lynne serve as co-chairpersons of MDA’s ALS Division.
ALS March of Faces
The ALS March of Faces is a patient/caregiver governed and operated non-profit organization, dedicated to heightening public awareness of ALS, and advocating on issues that concern and/or benefit PALS (People with ALS)
The Christopher and Dana Reeve Foundation
The Christopher and Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.
Extra Hands for ALS
Extra Hands is a national voluntary service charity developing young people into tomorrow's leaders by engaging them in the fight against ALS, also called Lou Gehrig's disease.
Irish Motor Neurone Disease Association
The Irish Motor Neurone Disease Association functions mainly as a support organisation for people who have MND, their carers and families. This work entails home visiting by our MND nurse specialists, financial assistance towards home help and supply of specialised equipment on loan to patients. The association also supports research into the causes and treatment of Motor Neurone Disease.
Matt White's Cure ALS Foundation
This website is designed to educate, entertain, and even inspire. By sharing the events of my life and my daily struggle to live with ALS you will learn how I do it, see the fun and interesting things someone in a wheelchair and on life support can do, and maybe you’ll find a way to try or do something you’ve never thought possible.
The ALS Division of MDA
The ALS Division of MDA offers the most comprehensive range of services of any voluntary health agency in the nation, and leads the search for a treatment or cure through its aggressive, worldwide research program.
Prize4Life
Prize4Life seeks to create breakthroughs in effective treatments for Amyotrophic Lateral Sclerosis (ALS) using the leverage of large inducement prizes.
Project ALS
"We founded Project A.L.S. on the notion that ALS would be solved not by brilliant individuals working in isolation, but by committed aggressive teams of researchers working together. It was the American way. It was our way. It was the only way we were going to win this thing."--Jenifer Estess
Ride For Life
Chris Pendergast’s life forever changed in 1993 upon being diagnosed with ALS. In keeping with his character, he seized the opportunities presented by this challenge and inspired others with his strength and determination. In 1998, he founded Ride For Life to better direct awareness and fundraising activities, and began the 350-mile powerwheelchair ride from Yankee Stadium to Washington, DC. The ride has become an annual event each May and now focuses on the New York City Metropolitan area. To date, Ride For Life has earned $2,000,000 for research and patient services.
United Spinal Association
United Spinal Association is a national 501(c)(3) nonprofit membership organization formed in 1946 by paralyzed veterans. Our mission is to improve the quality of life of Americans with spinal cord injuries and disorders (SCI/D). Membership is free and open to all individuals with spinal cord injuries and diseases.


Personal
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ALS Spread the Word
J.M.C. (Doc)'s blog, Blogger.
"ALS Sucks" splog
Living with ALS
"Drew Schemera's blog, "The Journey"
CAPRICORN!!! COMPETITIVE!!! CAREFREE and a RISK TAKER!! Loves a challenge and I'm fascinated by people. HELL BENT ON BEATING MY CHALLENGE (ALS)
Forward Focus
Forward Focus is an organization founded in 2008 by Sheri Allison, a photographer in North Carolina. The goal of Forward Focus is to create a network of photographers spanning the state, offering their time and talent to document memories at no charge for PALS and their families.
George Goodwin's ALS Independence
This site is dedicated to the many PALS living with this terrible disease as well as those who have lost their battles. It is also dedicated to the CALS who suffer along with their loved ones.
Gulfport Gal's ALS Closet
Great collection of links for all affected, or just desiring to learn more, about ALS.
Keri B. Still
This website is dedicated to honoring the memory of a lovely young woman... a daughter, wife, mother, and beloved sister to the world in which she excelled.
Kramer Family
Website of former US Army Ranger Lee Kramer, founder of the PALS "Over 5" club.
Matt White's Cure ALS Foundation
This website is designed to educate, entertain, and even inspire. By sharing the events of my life and my daily struggle to live with ALS you will learn how I do it, see the fun and interesting things someone in a wheelchair and on life support can do, and maybe you’ll find a way to try or do something you’ve never thought possible.
Peggy's Blog
Peggy Ragan's journey with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's Disease.
Sarah Ezekiel's Myspace
"'Every journey has a secret destination of which the traveler is unaware'".
Steven Shackel's ALS/MND Website
"This was the first website dedicated specifically to ALS/MND". It explores if a combination of existing medications and supplements, plus lifestyle and dietary changes may slow the progress of neurodegeneration in Amyotrophic Lateral Sclerosis/Motor Neurone Disease (ALS/MND).
Travis Solomon
1983 Syracuse University National Champion Goaltender, afflicted with Lou Gehrig's Disease
Pharmacology

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23andme.com
TIME Magazine announced that the Personal Genome Service™ from 23andMe, Inc. has been named 2008's Invention of the Year. 23andMe was chosen as the year's most significant invention for its exceptional work in making personal genomics accessible and affordable.
Clinical Trials & Studies of Neuromuscular Disease - Selective Listing
Active Trials | Completed Trials | Postponed Trials | Discontinued Trials
Lithium Open-Label Study
The purpose of this study is to find out whether lithium carbonate is safe for use in people with amyotrophic lateral sclerosis (ALS) and if it has any potential to slow the progression of the disease. The study is being conducted after a small pilot study in Italy showed very promising results.