September 2010
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“Don't tell God how big your storm is, tell the storm how big your God is!”
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Movie night

Saw “Sorcerer’s Apprentice” last night with Paul, Sarah and Maura. Great special effects, typical Cage, pretty predictable Bruckheimer. Props to Paul for being such a reliable friend, always showing up smiling in spite of his own life problems.

I think one of the keys for my survival with ALS is staying humble by recognizing that every one of us is going through some level of difficulty. There’s always someone worse off than me. If the way I keep pressing on with life, living with ALS in a positive manner (I have ALS, it doesn’t have me), makes someone else realize their own troubles pale in comparison, but I’m the one smiling through it, will they follow my lead? But there’s the twist; if I don’t complain on some level, make my plight, the difficulty of it known, they’ll miss the point. One thing I sometimes do when someone else complains about their own troubles is to say “I’ll trade ya?” I can only hope that opens their eyes to the possibility things can always get much worse.

I’ve written before about being accused, indirectly, of “using the church as an ER”, which answers the question whether prayer is my steering wheel or my spare tire. I have no shame in admitting, it was my spare tire. Heck, for a while there I’m pretty sure I was running on bare rims, sparks flying. But I was so blinded by earthly aspirations and good times as my spiritual life was a train-wreck looking for damaged track.  Now comes the question, how can others be inspired by someone in my condition, butt-surfing through life; “Why hasn’t he been healed?“. My answer to that, if you believe any of the Bible, you have to believe all of it. It’s never too late.

Matthew 11:28-30
28 Come unto me, all ye that labour and are heavy laden, and I will give you rest. 29 Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls. 30 For my yoke is easy, and my burden is light.

The King James Version, (Cambridge: Cambridge) 1769.

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2 comments to Movie night

  • maura

    hey stevie!

    we love u so much and you’re one of the most spiritual people i know. you’re a very holy man, and inspiration.

    we luv u and NEVER GIVE UP!!!!

  • Who says you’re NOT healed?? I’ve received lots of healing – spiritually speaking. I’ll claim physical healing too. So far, there are slight improvements. But you know what, Steve? I think God knows exactly what He’s doing and why… Keep right on living, loving, and laughing in the face of ALS. I’m with you!

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Because I have only limited functional use of one hand, I use Dasher, as shown here, to type without a keyboard, only a mouse. Great for loss of use of one hand, even if there's no fine motor control in your better hand. Also adaptable for eyegaze and head-mouse use. Give it a try! I supplement Dasher with an on-screen keyboard called Skeleton Key, created by a PALS, Dov Wisebrod.



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