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About
June 21, 2009, 08:08
Thanks for stopping by. After my diagnosis in July 2002, I came to realize there were only a few well-organized ALS-related links pages online, and…
- Site Glossary
  August 30, 2009, 21:41
  AAC Augmentative Alternative Communication ADA Americans with Disabilities Act ALS Amyotrophic Lateral Sclerosis, also known as MND, Motor Neuron Disease or…
Links
June 22, 2009, 23:07
Category Pages Advocacy - Blogroll - Caregiving - Communication - Connections - DME - Foundations - Merchandise - Military/Veterans - Mobility - Nutrition -…
- Merchandise
  August 16, 2010, 14:54
  Books, E-Books, Other Pubs - Film, DVDs, Videos - Music, CDs, MP3s - T-Shirts - Wristbands, Necklaces Books, E-Books & Other Pubs Audible What Is…
- Advocacy
  June 22, 2009, 23:10
  4ALS Awareness MLB has teamed up with four leading ALS organizations to raise awareness and funds to fight this deadly disease. They are sharing their…
- Blogroll
  June 22, 2009, 23:20
  Adventures of ALS Boy, The In his days prior to wearing the cape and cowl of the Amazing, Inspiring and Adventurous ALS Boy, Jason Picetti’s not-so-sec…
- Caregiving
  July 28, 2010, 18:57
  Check out this video on monitoring loved ones when you can't be there. ALS.Needlist.org Review needs posted by people with ALS & their…
- Communication
  June 22, 2009, 23:09
  AAC Rehabilitation Engineering Research Centers (RERCs), The The AAC-RERC conducts a comprehensive program of research, development, training, and…
- Connections
  June 22, 2009, 23:13
  ALS Advocacy Support Community, The The ALS Advocacy Support Community connects patients, families, friends and caregivers for support and inspiration.…
- Durable Medical Equipment
  June 22, 2009, 23:11
  Beds - Cough-assists - DME Dealers - Door Openers - Lifts - Oral Hygiene - Shower chairs - Standers - Toileting - Ventilators/BiPAPs/CPAPS - Beds M…
- Mobility
  June 22, 2009, 23:16
  Accessibility - Transportation - Travel Accessibility Accessibility News The Accessibility news is a venue for information sharing, providing…
- Foundations
  June 22, 2009, 23:18
  Non-profits - Foundations Non-profits ALS Association As the only not-for-profit voluntary health agency dedicated solely to the fight against ALS,…
- Military Veterans
  July 29, 2010, 12:33
  ALS IN THE MILITARY - Unexpected Consequences of Military Service Nearly seventy years ago, baseball legend Lou Gehrig gave his name to a mysterious and…
- Nutrition
  July 29, 2010, 12:40
  Bard Peg Tube Ceaning Brush Cleaning Brush for use with 20F Silicone Pegs. Feed Tube Cleaning Brush. Peg Tube Brush has Female luer lock hub which…
- Research
  July 29, 2010, 12:48
  23andme.com TIME Magazine announced that the Personal Genome Service™ from 23andMe, Inc. has been named 2008’s Invention of the Year. 23andMe was…
- Resources
  July 29, 2010, 12:51
  ALS Association Resources As a service to the ALS community, we have provided various resources, including publications and videos produced by The…
- Software
  July 29, 2010, 13:02
  Distributors - e-Readers - Keyboard/Mouse Alternatives - Speech Recognition - Text-to-Speech - Word Prediction/Auto-complete - Other Software Distribut…
- Technology
  July 29, 2010, 12:10
  Brain-Computer Interface - Tech Distributors - Door Openers - Environmental Control - Mouse Alternatives - Page Turners - Technology News Brain-Computer…
- Wheelchairs and Accessories
  July 29, 2010, 13:16
  Manufacturers and Distributors - Specialty Chairs - Chair Accessories - User Groups Manufacturers and Distributors Invacare Invacare Homecare is the…
ALS-FRS
June 25, 2009, 14:08
Many ALS centers use the FRS to get a general, overall impression of how a person is doing. There are three questions for each area: bulbar (chewing…
Site Map
April 30, 2010, 21:53
This page contains the site table of contents. Use it to quickly find content on this website.

Blog Posts

Category: Uncategorized (10)
- Tiny magnet reads tongue motion to control wheelchairs by: Steve
  August 17, 2009, 19:07
  The tongue stud, that in-your-face accessory to rebellion, could spell freedom of another kind for people with major paralysis, thanks to researchers developing…
- Heeeere we go... by: Steve
  August 13, 2009, 11:15
  It's 10:25 a.m., and it's just been one of those mornings. First, my agency aid didn't show at 8:00, and the night shifter had gone back to bed, so was getting…
- THIS...is ALS! by: Steve
  July 26, 2009, 20:00
  Remember this tv commercial? I think anyone in the USA older than 35 or so will easily recognize it. Pretty outdated right? Now check out this video.…
- Hills and Valleys by: Steve
  July 24, 2009, 09:57
  If there appeared a genie granting me three wishes, one would be not to have lived the last 48 or so hours. More on that in a minute. I just decided to put all…
- Dear Abby Readers Learned About ALS in Veterans Today by: Steve
  July 20, 2009, 19:53
  Saturday, July 18, 2009 Today was certainly a good one for getting the word out about ALS and veterans' presumptive disability. http://www.philly.com/phil…
- The Diving Bell, the Butterfly and guilt-free faith by: Steve
  July 19, 2009, 15:48
  Thought I'd start this post with a movie review or two. This week's movie night was "Public Enemies" with Johnny Depp as John Dillinger, and Christian Bale as…
- Chair envy by: Steve
  July 12, 2009, 09:57
  If you know me, you know I enjoy adapting common, every day objects to make my life with ALS easier to tolerate, and God knows we need all the help we can get.…
- Beautiful morning by: Steve
  July 12, 2009, 08:59
  It's a beautiful Sunday morning. I was just thinking about one of those "getting to know your friends" email surveys I've received so many of in the past few…
- Let's go down... by: Steve
  July 6, 2009, 14:17
  There's something that's been on my mind for several years now. Not long after my retirement and return to Fayetteville, Ayse and I were looking for a church…
- Happy Independence Day by: Steve
  July 5, 2009, 13:38
  Great weekend! I guess it started with movie night Thursday...I was blown away by the new Transformers movie! No wonder it was sold out last week. And luckily,…
Category: entertainment (5)
- What a long strange trip... by: Steve
  August 22, 2010, 11:25
  This past week has been nothing short of interesting to say the least. But what's life if not completely the unexpected? Someone once quoted that "Life is what…
- Mind...AT EASE! by: Steve
  July 22, 2010, 23:33
  This is my way of putting my mind at ease, spilling the web of brain activity into my blog through a scramble of mouse gestures on my laptray, via Dasher.…
- Couldn't resist... by: Steve
  September 25, 2009, 23:20
  Too good not to share...
- My "top ten list" by: Steve
  August 8, 2009, 14:47
  Another steamy August day, plenty reason to stay inside, but I have a birthday present to find (God help me!), but it ain't hap'nin til after I get more rest.…
- To Begin...Again. by: Steve
  June 22, 2009, 17:59
  Okay, doing my best to collect the many thoughts I've been having in mind for this. Why do they always seem to come when I'm not at my laptop? After my first…
Category: holidays (3)
- Memorial Day and the other war by: Steve
  June 1, 2010, 10:45
  Iraq, Afghanistan...pretty easy to find out how many lives have been lost, sacrifices made in these conflicts. But what about the other war most veterans and…
- Merry Christmas! by: Steve
  December 25, 2009, 15:37
  How do you feel about the holiday season here in the states? While it's certainly true about the US being a "melting pot", I believe a more accurate description…
- To Begin...Again. by: Steve
  June 22, 2009, 17:59
  Okay, doing my best to collect the many thoughts I've been having in mind for this. Why do they always seem to come when I'm not at my laptop? After my first…
Category: Spirituality (10)
- Movie night by: Steve
  July 16, 2010, 12:38
  Saw "Sorcerer's Apprentice" last night with Paul, Sarah and Maura. Great special effects, typical Cage, pretty predictable Bruckheimer. Props to Paul for being…
- Edmund, the OBX and answered prayer by: Steve
  July 7, 2010, 22:52
  During my first tour in Germany, my favorite barber on the base had a very distinctive, accented way of answering the phone, located just beside his chair,…
- Spring FORWARD by: Steve
  March 21, 2010, 12:48
  What's not to love about spring? The trees are blooming, daffodils are reaching for the sun, the days are longer and everywhere you look there's evidence of…
- Merry Christmas! by: Steve
  December 25, 2009, 15:37
  How do you feel about the holiday season here in the states? While it's certainly true about the US being a "melting pot", I believe a more accurate description…
- Thanks Jill! by: Steve
  October 27, 2009, 12:41
  2 Cor 4:16 That is why we never give up. Though our bodies are dying, our spirits are being renewed every day. 17 For our present troubles are small and…
- Playing Catch-up by: Steve
  September 29, 2009, 10:37
  Finally the A/C has been turned off, windows opened and a gentle breeze tickles the patio wind-chime on it's way in, for a dance with the curtains. Where did…
- "If a tree falls..." by: Steve
  September 8, 2009, 22:40
  Just came in from walking Pepper with Rose. Ran into my good friends Paul, Dina and Sarah; they were just leaving their house to come over here to get their…
- The glass isn't half-full... by: Steve
  September 4, 2009, 09:19
  It's been a while since I've posted...been going through some extra difficulties not related to ALS, but it's one of those things where you wonder what effect…
- My "top ten list" by: Steve
  August 8, 2009, 14:47
  Another steamy August day, plenty reason to stay inside, but I have a birthday present to find (God help me!), but it ain't hap'nin til after I get more rest.…
- Try As I May... by: Steve
  June 26, 2009, 12:30
  Okay, I get it that people just don't want to be around negativity. I say this because I've been told I tend to hide what's really going on in my head, need to…
Category: ALS / MND (67)
- What a long strange trip... by: Steve
  August 22, 2010, 11:25
  This past week has been nothing short of interesting to say the least. But what's life if not completely the unexpected? Someone once quoted that "Life is what…
- Tobii ATI introduces the Tobii S32™ by: Steve
  August 14, 2010, 12:27
  This new recorded speech device looks promising, with 90 hours of recording time, touch and switch scan access, plus built-in IR control for your remote…
- One man's suffering is another's... by: Steve
  August 13, 2010, 22:25
  Back from a few days in Thomasville. Cindy's mom had a pretty major surgical procedure Monday. We got to the hospital about an hour after they took her back.…
- Movie night by: Steve
  July 16, 2010, 12:38
  Saw "Sorcerer's Apprentice" last night with Paul, Sarah and Maura. Great special effects, typical Cage, pretty predictable Bruckheimer. Props to Paul for being…
- Edmund, the OBX and answered prayer by: Steve
  July 7, 2010, 22:52
  During my first tour in Germany, my favorite barber on the base had a very distinctive, accented way of answering the phone, located just beside his chair,…
- VA Proposed Change for Rating ALS by: Steve
  June 24, 2010, 11:18
  SUMMARY: The Department of Veterans Affairs (VA) proposes to amend its Schedule for Rating Disabilities by revising the evaluation criterion for amyotrophic…
- Changelog, June update by: Steve
  June 18, 2010, 12:54
  Had a great time attending Hillary's graduation last weekend; especially getting to meet much of Cindy's extended family at the grad party Friday night. If I…
- Day 28...like any other by: Steve
  May 28, 2010, 22:48
  Wrapping up the month of writing on a "day in the life", I think one thing is pretty obvious: as long as I'm able, and at most every opportunity, I'll continue…
- 31 Days of ALS...Day 15, 16 by: Steve
  May 16, 2010, 11:20
  For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with…
- 31 Days...Day 10 by: Steve
  May 13, 2010, 18:28
  For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS.…
- 31 Days of ALS...Day 9 by: Steve
  May 11, 2010, 20:38
  For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS.…
- 31 Days of ALS...Day 8 by: Steve
  May 10, 2010, 13:22
  For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS.…
- 31 Days of ALS, Day 7 by: Steve
  May 9, 2010, 17:07
  For the month of May, ALS Awareness month, I'm doing my best to chronicle what it's like to have, live with or care for someone with ALS. Although…
- 31 Days of ALS...Day 6 by: Steve
  May 7, 2010, 13:53
  For the month of May, ALS Awareness month, I'm doing my best to chronicle what it's like to have, live with or care for someone with ALS. Although many…
- 31 Days of ALS...Day 5 by: Steve
  May 5, 2010, 22:19
  For the month of May, ALS Awareness month, I'm doing my best to chronicle what it's like to have, live with or care for someone with ALS. Although many…
- 31 Days of ALS, Day 3 by: Steve
  May 3, 2010, 21:48
  For the month of May, ALS Awareness month, I'm doing my best to chronicle what it's like to have, live with or care for someone with ALS. Although many of…
- 31 Days of ALS, Days 1 and 2 by: Steve
  May 2, 2010, 19:57
  For the month of May, ALS Awareness month, I'll be doing my best to chronicle what it's like to have, live with or care for someone with ALS. This is not…
- Toyota Recall: Rampvan Wheelchair Vans Not Affected by: Steve
  April 24, 2010, 09:06
  This is from the BraunAbility Voice blog. Although it no longer applies to me, I thought it's worth sharing. Posted by Jack on Tuesday, April 20th,…
- Thank you Steve's Striders! by: Steve
  April 11, 2010, 19:23
  Hard to believe, but another ALS walk has come and gone, and although there were around 100 more people than last year's 600+, we only raised about half the…
- Spring FORWARD by: Steve
  March 21, 2010, 12:48
  What's not to love about spring? The trees are blooming, daffodils are reaching for the sun, the days are longer and everywhere you look there's evidence of…
- ALS Walk! by: Steve
  March 10, 2010, 11:00
  Dear Friends, It's time once again to dust off your walking shoes and join me as a member of my walk team, "Steve's Striders" in our quest to help find a…
- Dynavox Eyemax, Milkshake Machine and the Cough Assist by: Steve
  February 21, 2010, 11:08
  Plenty new terminology around this "White house" these days, especially for Cindy, Maura and the caregivers. Received my Dynavox Eyemax eyegaze-controlled…
- Couldn't resist... by: Steve
  February 12, 2010, 09:30
  Subject: Doctors An Israeli doctor says, "Medicine in my country is so advanced that we can take a kidney out of one man, put it in another, and have him…
- Once a tinkerer... by: Steve
  February 8, 2010, 21:47
  I've met some highly-skilled, mechanically-inclined people in my short time here...well, seems short anyway, but when I consider I'm closer to a "half-century",…
- Happenings, site updates by: Steve
  February 6, 2010, 15:17
  As Cindy and Maura clang away in the kitchen, organizing and cooking a meal for a close friend who recently had surgery, I've been hammering away at the dasher…
- iGive...do you?? by: Steve
  January 29, 2010, 09:39
  I've found a simple way to raise money, every time I shop online or search the web, and I think you should check it out! I'm using iGive.com to raise money…
- Live for the Moment by: Steve
  January 28, 2010, 20:04
  Looking forward to this new show on CBS tonight at 9:00. "Live for the Moment", hosted by Jeff Probst of "Survivor". Hopefully they'll put enough emphasis on…
- Sleep Apnea | EasyLife by: Steve
  January 21, 2010, 10:42
  Sleep Apnea | EasyLife. Philips Respironics has just introduced this new CPAP/BiPAP mask that they claim "readily adapts to facial contours to create an…
- For the moment... by: Steve
  January 12, 2010, 10:25
  This upcoming new show portrays normal people with a reason to "Live for the Moment". This one has ALS...but how can we adopt such an attitude without having…
- YouTube - Ben McNeal by: Steve
  December 10, 2009, 19:33
  Just ran across this in a google alert. So many things in life that just don't make sense...especially in these most recent years, for me anyway. I just wonder…
- A Week in 30 minutes... by: Steve
  December 5, 2009, 14:32
  People tell me I'm so well-organized. Most likely my USAF career-mindedness, but I'm definitely nowhere near being organized like I want to be, or once was. I…
- The Loneliest Number by: Steve
  December 2, 2009, 14:19
  I'm not very good at being alone. Most of you are most likely well aware of my divorce this past April. This is not about placing blame or pointing fingers,…
- Got me...‘PEG'd’ by: Steve
  November 19, 2009, 14:38
  well /w?l/ Show Spelled Pronunciation adverb, adjective, comparative bet?ter, superlative best, interjection, noun –adverb 1.…
- Lou Gehrig's Disease: The Military Connection and ALS by: Steve
  November 11, 2009, 19:55
  I thought this video was quite fitting for Veteran's Day...enough said.
- Fall Out...and FALLOUT!! by: Steve
  November 7, 2009, 15:10
  Cold fall morning here in NC, mid-40s when I woke. Seems like yesterday I was sleeping in shorts and t-shirt. Now I don't dare be out of the bed without socks…
- Life, summarized... by: Steve
  October 15, 2009, 10:43
  I received this in an email this morning, along with the remark, "Crap! I'm already on the third bottle!" Unless you're some kind of infant genius, you're…
- Outside-in by: Steve
  October 11, 2009, 18:09
  Before I get sucked even further into "distractionville", I thought I should write a few lines while my head is full of original thought instead of the daily…
- ALS may involve a form of sudden, rapid aging of the immune system by: Steve
  October 9, 2009, 19:57
  Premature aging of the immune system appears to play a role in the development of amyotrophic lateral sclerosis (ALS), or Lou Gehrig’s disease, according…
- Rogers Nokia E71 now equipped with TALKS software by: Steve
  October 6, 2009, 10:28
  Rogers Wireless has announced it will now be offering the Nokia E71 mobile phone with Nuance’s TALKS software for consumers who are blind or living with…
- Playing Catch-up by: Steve
  September 29, 2009, 10:37
  Finally the A/C has been turned off, windows opened and a gentle breeze tickles the patio wind-chime on it's way in, for a dance with the curtains. Where did…
- Lou Gehrig’s disease is now treatable(?) by: Steve
  September 13, 2009, 21:30
  Just found this in a google alert...could it be for real? Here is the source. I'm treating this with much apprehension, and even more hope... by admin ~…
- ALS Vets' Widows Entitled to Benefits, Deadline Approaching by: Steve
  September 12, 2009, 19:27
  The following excerpt is from AirAmerica.com: More and more Americans, especially those who have served in the military, are being diagnosed with ALS--also…
- "If a tree falls..." by: Steve
  September 8, 2009, 22:40
  Just came in from walking Pepper with Rose. Ran into my good friends Paul, Dina and Sarah; they were just leaving their house to come over here to get their…
- The glass isn't half-full... by: Steve
  September 4, 2009, 09:19
  It's been a while since I've posted...been going through some extra difficulties not related to ALS, but it's one of those things where you wonder what effect…
- ALS Circus, clown-free by: Steve
  August 26, 2009, 23:24
  What? Not a "Bucky fan"? Me either, but anything for the cause... I figured I better get Sunday's excitement documented before the next act in the ALS…
- A challenge...of sorts by: Steve
  August 21, 2009, 15:24
  People are constantly saying they "can't imagine what it must be like" to have ALS. Or "I couldn't walk in your shoes" etc. That being said, a friend once…
- Tiny magnet reads tongue motion to control wheelchairs by: Steve
  August 17, 2009, 19:07
  The tongue stud, that in-your-face accessory to rebellion, could spell freedom of another kind for people with major paralysis, thanks to researchers developing…
- Swine flu vaccine linked to deadly nerve disease? by: Steve
  August 16, 2009, 20:39
  I have an email friend who I get regular email from, maybe 3 or 4 a week. We all like to get email from friends, but when the subject matter doesn't change…
- My "top ten list" by: Steve
  August 8, 2009, 14:47
  Another steamy August day, plenty reason to stay inside, but I have a birthday present to find (God help me!), but it ain't hap'nin til after I get more rest.…
- ALS AND STATINS: EPIDEMIC? by: Steve
  July 31, 2009, 17:25
  I think I should apologize in advance for posting something like this, "unscrubbed" as such, but felt it worthy of posting. Very interesting read! Another…
- THIS...is ALS! by: Steve
  July 26, 2009, 20:00
  Remember this tv commercial? I think anyone in the USA older than 35 or so will easily recognize it. Pretty outdated right? Now check out this video.…
- Hills and Valleys by: Steve
  July 24, 2009, 09:57
  If there appeared a genie granting me three wishes, one would be not to have lived the last 48 or so hours. More on that in a minute. I just decided to put all…
- Quick Update by: Steve
  July 8, 2009, 22:40
  Just a few lines while I'm thinking about it, before the next distraction. Proud to say I actually knocked out most of the links I've been accumulating to…
- NH Lake Algae Possible ALS Link by: Steve
  June 28, 2009, 08:58
  I'd seen this story before, but I believe this one does a better job of explaining the potential link between lake or pond algae and neurological disease such…
- Category: bipap (6)
  - Changelog, June update by: Steve
    June 18, 2010, 12:54
    Had a great time attending Hillary's graduation last weekend; especially getting to meet much of Cindy's extended family at the grad party Friday night. If I…
  - Day 28...like any other by: Steve
    May 28, 2010, 22:48
    Wrapping up the month of writing on a "day in the life", I think one thing is pretty obvious: as long as I'm able, and at most every opportunity, I'll continue…
  - Who needs a "Teeter Hangups".... by: Steve
    April 23, 2010, 21:10
    ....when you're in a Permobil power chair? Here's the story... I believe most anyone in a power chair can relate to this, whether you have the tilt/recline…
  - Sleep Apnea | EasyLife by: Steve
    January 21, 2010, 10:42
    Sleep Apnea | EasyLife. Philips Respironics has just introduced this new CPAP/BiPAP mask that they claim "readily adapts to facial contours to create an…
  - 39...with 8 years experience by: Steve
    October 26, 2009, 19:19
    Just a quick update for the sake of getting a few things off my mind. Had a great 47th bday yesterday. Rose took me to the new theater to see "Couples…
  - To Begin...Again. by: Steve
    June 22, 2009, 17:59
    Okay, doing my best to collect the many thoughts I've been having in mind for this. Why do they always seem to come when I'm not at my laptop? After my first…
- Category: In the news (10)
  - Changes, ya'll! by: Steve
    August 29, 2010, 15:29
    Sunday morning, and Food Network on the tv, am I a glutton for punishment or what? My diet recently has been pretty sparse. My daily cereal processed with…
  - Mind...AT EASE! by: Steve
    July 22, 2010, 23:33
    This is my way of putting my mind at ease, spilling the web of brain activity into my blog through a scramble of mouse gestures on my laptray, via Dasher.…
  - VA Proposed Change for Rating ALS by: Steve
    June 24, 2010, 11:18
    SUMMARY: The Department of Veterans Affairs (VA) proposes to amend its Schedule for Rating Disabilities by revising the evaluation criterion for amyotrophic…
  - ALS Walk! by: Steve
    March 10, 2010, 11:00
    Dear Friends, It's time once again to dust off your walking shoes and join me as a member of my walk team, "Steve's Striders" in our quest to help find a…
  - Sleep Apnea | EasyLife by: Steve
    January 21, 2010, 10:42
    Sleep Apnea | EasyLife. Philips Respironics has just introduced this new CPAP/BiPAP mask that they claim "readily adapts to facial contours to create an…
  - ALS may involve a form of sudden, rapid aging of the immune system by: Steve
    October 9, 2009, 19:57
    Premature aging of the immune system appears to play a role in the development of amyotrophic lateral sclerosis (ALS), or Lou Gehrig’s disease, according…
  - Swine flu vaccine linked to deadly nerve disease? by: Steve
    August 16, 2009, 20:39
    I have an email friend who I get regular email from, maybe 3 or 4 a week. We all like to get email from friends, but when the subject matter doesn't change…
  - THIS...is ALS! by: Steve
    July 26, 2009, 20:00
    Remember this tv commercial? I think anyone in the USA older than 35 or so will easily recognize it. Pretty outdated right? Now check out this video.…
  - Toyota Scientists Succeed in Thought-Controlled Wheelchair by: Steve
    June 29, 2009, 18:35
    So let me get this straight: a team of scientists, using their brains, build a computer interface (artificial brain) to guide wheelchairs, ) through the …
  - NH Lake Algae Possible ALS Link by: Steve
    June 28, 2009, 08:58
    I'd seen this story before, but I believe this one does a better job of explaining the potential link between lake or pond algae and neurological disease such…
- Category: wheelchair (8)
  - One man's suffering is another's... by: Steve
    August 13, 2010, 22:25
    Back from a few days in Thomasville. Cindy's mom had a pretty major surgical procedure Monday. We got to the hospital about an hour after they took her back.…
  - Wheelchair van for sale by: Steve
    August 13, 2010, 11:06
    2008 Dodge Caravan SXT, silver- 3.8 V6; AMFM CD MP3 radio, power everything including rear & side doors. EXCELLENT condition the rear load ramp itself is…
  - Changelog, June update by: Steve
    June 18, 2010, 12:54
    Had a great time attending Hillary's graduation last weekend; especially getting to meet much of Cindy's extended family at the grad party Friday night. If I…
  - Day 28...like any other by: Steve
    May 28, 2010, 22:48
    Wrapping up the month of writing on a "day in the life", I think one thing is pretty obvious: as long as I'm able, and at most every opportunity, I'll continue…
  - Who needs a "Teeter Hangups".... by: Steve
    April 23, 2010, 21:10
    ....when you're in a Permobil power chair? Here's the story... I believe most anyone in a power chair can relate to this, whether you have the tilt/recline…
  - Sunday morning stroll... by: Steve
    January 5, 2010, 10:41
    ...through the ALS jungle. Why is my tail-bone hurting? Less cushion back there? Need more air in my roho cushion? Where's the morning headache coming from?…
  - "If a tree falls..." by: Steve
    September 8, 2009, 22:40
    Just came in from walking Pepper with Rose. Ran into my good friends Paul, Dina and Sarah; they were just leaving their house to come over here to get their…
  - Tiny magnet reads tongue motion to control wheelchairs by: Steve
    August 17, 2009, 19:07
    The tongue stud, that in-your-face accessory to rebellion, could spell freedom of another kind for people with major paralysis, thanks to researchers developing…
- Category: peg/feeding tube (5)
  - Changes, ya'll! by: Steve
    August 29, 2010, 15:29
    Sunday morning, and Food Network on the tv, am I a glutton for punishment or what? My diet recently has been pretty sparse. My daily cereal processed with…
  - 31 Days of ALS...Day 9 by: Steve
    May 11, 2010, 20:38
    For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS.…
  - Fall Out...and FALLOUT!! by: Steve
    November 7, 2009, 15:10
    Cold fall morning here in NC, mid-40s when I woke. Seems like yesterday I was sleeping in shorts and t-shirt. Now I don't dare be out of the bed without socks…
  - "If a tree falls..." by: Steve
    September 8, 2009, 22:40
    Just came in from walking Pepper with Rose. Ran into my good friends Paul, Dina and Sarah; they were just leaving their house to come over here to get their…
  - Quick Update by: Steve
    July 8, 2009, 22:40
    Just a few lines while I'm thinking about it, before the next distraction. Proud to say I actually knocked out most of the links I've been accumulating to…
- Category: advocacy (7)
  - Memorial Day and the other war by: Steve
    June 1, 2010, 10:45
    Iraq, Afghanistan...pretty easy to find out how many lives have been lost, sacrifices made in these conflicts. But what about the other war most veterans and…
  - 31 Days of ALS...Day 6 by: Steve
    May 7, 2010, 13:53
    For the month of May, ALS Awareness month, I'm doing my best to chronicle what it's like to have, live with or care for someone with ALS. Although many…
  - 31 Days of ALS, Days 1 and 2 by: Steve
    May 2, 2010, 19:57
    For the month of May, ALS Awareness month, I'll be doing my best to chronicle what it's like to have, live with or care for someone with ALS. This is not…
  - Lou Gehrig's Disease: The Military Connection and ALS by: Steve
    November 11, 2009, 19:55
    I thought this video was quite fitting for Veteran's Day...enough said.
  - Just imagine... by: Steve
    November 2, 2009, 15:19
    Ran across this youtube video on facebook. It does a good job of putting the viewer's imagination to work. I have a few more lines to add: Imagine... …
  - The glass isn't half-full... by: Steve
    September 4, 2009, 09:19
    It's been a while since I've posted...been going through some extra difficulties not related to ALS, but it's one of those things where you wonder what effect…
  - A challenge...of sorts by: Steve
    August 21, 2009, 15:24
    People are constantly saying they "can't imagine what it must be like" to have ALS. Or "I couldn't walk in your shoes" etc. That being said, a friend once…
- Category: Theories (3)
  - ALS may involve a form of sudden, rapid aging of the immune system by: Steve
    October 9, 2009, 19:57
    Premature aging of the immune system appears to play a role in the development of amyotrophic lateral sclerosis (ALS), or Lou Gehrig’s disease, according…
  - Swine flu vaccine linked to deadly nerve disease? by: Steve
    August 16, 2009, 20:39
    I have an email friend who I get regular email from, maybe 3 or 4 a week. We all like to get email from friends, but when the subject matter doesn't change…
  - ALS AND STATINS: EPIDEMIC? by: Steve
    July 31, 2009, 17:25
    I think I should apologize in advance for posting something like this, "unscrubbed" as such, but felt it worthy of posting. Very interesting read! Another…
- Category: Drugs (1)
  - 31 Days of ALS...Day 9 by: Steve
    May 11, 2010, 20:38
    For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS.…
- Category: Hope (5)
  - Edmund, the OBX and answered prayer by: Steve
    July 7, 2010, 22:52
    During my first tour in Germany, my favorite barber on the base had a very distinctive, accented way of answering the phone, located just beside his chair,…
  - Thanks Jill! by: Steve
    October 27, 2009, 12:41
    2 Cor 4:16 That is why we never give up. Though our bodies are dying, our spirits are being renewed every day. 17 For our present troubles are small and…
  - ALS may involve a form of sudden, rapid aging of the immune system by: Steve
    October 9, 2009, 19:57
    Premature aging of the immune system appears to play a role in the development of amyotrophic lateral sclerosis (ALS), or Lou Gehrig’s disease, according…
  - Playing Catch-up by: Steve
    September 29, 2009, 10:37
    Finally the A/C has been turned off, windows opened and a gentle breeze tickles the patio wind-chime on it's way in, for a dance with the curtains. Where did…
  - Lou Gehrig’s disease is now treatable(?) by: Steve
    September 13, 2009, 21:30
    Just found this in a google alert...could it be for real? Here is the source. I'm treating this with much apprehension, and even more hope... by admin ~…
- Category: Research (1)
  - ALS may involve a form of sudden, rapid aging of the immune system by: Steve
    October 9, 2009, 19:57
    Premature aging of the immune system appears to play a role in the development of amyotrophic lateral sclerosis (ALS), or Lou Gehrig’s disease, according…
- Category: symptoms (3)
  - 31 Days of ALS...Day 9 by: Steve
    May 11, 2010, 20:38
    For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS.…
  - 31 Days...Day 4 by: Steve
    May 5, 2010, 19:12
    For the month of May, ALS Awareness month, I'm doing my best to chronicle what it's like to have, live with or care for someone with ALS. Although many of…
  - Sunday morning stroll... by: Steve
    January 5, 2010, 10:41
    ...through the ALS jungle. Why is my tail-bone hurting? Less cushion back there? Need more air in my roho cushion? Where's the morning headache coming from?…
- Category: attitude (8)
  - What a long strange trip... by: Steve
    August 22, 2010, 11:25
    This past week has been nothing short of interesting to say the least. But what's life if not completely the unexpected? Someone once quoted that "Life is what…
  - One man's suffering is another's... by: Steve
    August 13, 2010, 22:25
    Back from a few days in Thomasville. Cindy's mom had a pretty major surgical procedure Monday. We got to the hospital about an hour after they took her back.…
  - Dog Days by: Steve
    August 3, 2010, 21:22
    Maura and I just returned from walking Pepper. Love the evenings when the air cools and the sun has set. Ever wonder why people say "the dog days of summer"?…
  - Movie night by: Steve
    July 16, 2010, 12:38
    Saw "Sorcerer's Apprentice" last night with Paul, Sarah and Maura. Great special effects, typical Cage, pretty predictable Bruckheimer. Props to Paul for being…
  - 31 Days of ALS...Day 6 by: Steve
    May 7, 2010, 13:53
    For the month of May, ALS Awareness month, I'm doing my best to chronicle what it's like to have, live with or care for someone with ALS. Although many…
  - Who needs a "Teeter Hangups".... by: Steve
    April 23, 2010, 21:10
    ....when you're in a Permobil power chair? Here's the story... I believe most anyone in a power chair can relate to this, whether you have the tilt/recline…
  - Spring FORWARD by: Steve
    March 21, 2010, 12:48
    What's not to love about spring? The trees are blooming, daffodils are reaching for the sun, the days are longer and everywhere you look there's evidence of…
  - For the moment... by: Steve
    January 12, 2010, 10:25
    This upcoming new show portrays normal people with a reason to "Live for the Moment". This one has ALS...but how can we adopt such an attitude without having…
- Category: shopping (2)
  - 31 Days of ALS, Day 7 by: Steve
    May 9, 2010, 17:07
    For the month of May, ALS Awareness month, I'm doing my best to chronicle what it's like to have, live with or care for someone with ALS. Although…
  - iGive...do you?? by: Steve
    January 29, 2010, 09:39
    I've found a simple way to raise money, every time I shop online or search the web, and I think you should check it out! I'm using iGive.com to raise money…
- Category: equipment (9)
  - Changes, ya'll! by: Steve
    August 29, 2010, 15:29
    Sunday morning, and Food Network on the tv, am I a glutton for punishment or what? My diet recently has been pretty sparse. My daily cereal processed with…
  - Tobii ATI introduces the Tobii S32™ by: Steve
    August 14, 2010, 12:27
    This new recorded speech device looks promising, with 90 hours of recording time, touch and switch scan access, plus built-in IR control for your remote…
  - Dog Days by: Steve
    August 3, 2010, 21:22
    Maura and I just returned from walking Pepper. Love the evenings when the air cools and the sun has set. Ever wonder why people say "the dog days of summer"?…
  - Changelog, June update by: Steve
    June 18, 2010, 12:54
    Had a great time attending Hillary's graduation last weekend; especially getting to meet much of Cindy's extended family at the grad party Friday night. If I…
  - Day 28...like any other by: Steve
    May 28, 2010, 22:48
    Wrapping up the month of writing on a "day in the life", I think one thing is pretty obvious: as long as I'm able, and at most every opportunity, I'll continue…
  - 31 Days of ALS...Day 8 by: Steve
    May 10, 2010, 13:22
    For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS.…
  - 31 Days of ALS, Day 7 by: Steve
    May 9, 2010, 17:07
    For the month of May, ALS Awareness month, I'm doing my best to chronicle what it's like to have, live with or care for someone with ALS. Although…
  - Who needs a "Teeter Hangups".... by: Steve
    April 23, 2010, 21:10
    ....when you're in a Permobil power chair? Here's the story... I believe most anyone in a power chair can relate to this, whether you have the tilt/recline…
  - Dynavox Eyemax, Milkshake Machine and the Cough Assist by: Steve
    February 21, 2010, 11:08
    Plenty new terminology around this "White house" these days, especially for Cindy, Maura and the caregivers. Received my Dynavox Eyemax eyegaze-controlled…
- Category: AAC (1)
  - Tobii ATI introduces the Tobii S32™ by: Steve
    August 14, 2010, 12:27
    This new recorded speech device looks promising, with 90 hours of recording time, touch and switch scan access, plus built-in IR control for your remote…
Category: tech (12)
- Tobii ATI introduces the Tobii S32™ by: Steve
  August 14, 2010, 12:27
  This new recorded speech device looks promising, with 90 hours of recording time, touch and switch scan access, plus built-in IR control for your remote…
- One man's suffering is another's... by: Steve
  August 13, 2010, 22:25
  Back from a few days in Thomasville. Cindy's mom had a pretty major surgical procedure Monday. We got to the hospital about an hour after they took her back.…
- The Future Is... by: Steve
  August 6, 2010, 22:01
  Hackers alter Wii controller for disabled users University of Delaware students say they have hacked the Wii video game controller and the Wii Fit’s Wii…
- Dog Days by: Steve
  August 3, 2010, 21:22
  Maura and I just returned from walking Pepper. Love the evenings when the air cools and the sun has set. Ever wonder why people say "the dog days of summer"?…
- Changelog, June update by: Steve
  June 18, 2010, 12:54
  Had a great time attending Hillary's graduation last weekend; especially getting to meet much of Cindy's extended family at the grad party Friday night. If I…
- 31 Days of ALS...Day 8 by: Steve
  May 10, 2010, 13:22
  For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS.…
- Dynavox Eyemax, Milkshake Machine and the Cough Assist by: Steve
  February 21, 2010, 11:08
  Plenty new terminology around this "White house" these days, especially for Cindy, Maura and the caregivers. Received my Dynavox Eyemax eyegaze-controlled…
- Sleep Apnea | EasyLife by: Steve
  January 21, 2010, 10:42
  Sleep Apnea | EasyLife. Philips Respironics has just introduced this new CPAP/BiPAP mask that they claim "readily adapts to facial contours to create an…
- A New Beginning by: Steve
  January 10, 2010, 11:22
  Just as the days begin to grow longer, as sure as the morning dew on a cool Carolina morning, hope springs forth from this amazing new love sent from the…
- Rogers Nokia E71 now equipped with TALKS software by: Steve
  October 6, 2009, 10:28
  Rogers Wireless has announced it will now be offering the Nokia E71 mobile phone with Nuance’s TALKS software for consumers who are blind or living with…
- Tiny magnet reads tongue motion to control wheelchairs by: Steve
  August 17, 2009, 19:07
  The tongue stud, that in-your-face accessory to rebellion, could spell freedom of another kind for people with major paralysis, thanks to researchers developing…
- Toyota Scientists Succeed in Thought-Controlled Wheelchair by: Steve
  June 29, 2009, 18:35
  So let me get this straight: a team of scientists, using their brains, build a computer interface (artificial brain) to guide wheelchairs, ) through the …
Category: events (12)
- One man's suffering is another's... by: Steve
  August 13, 2010, 22:25
  Back from a few days in Thomasville. Cindy's mom had a pretty major surgical procedure Monday. We got to the hospital about an hour after they took her back.…
- Edmund, the OBX and answered prayer by: Steve
  July 7, 2010, 22:52
  During my first tour in Germany, my favorite barber on the base had a very distinctive, accented way of answering the phone, located just beside his chair,…
- Changelog, June update by: Steve
  June 18, 2010, 12:54
  Had a great time attending Hillary's graduation last weekend; especially getting to meet much of Cindy's extended family at the grad party Friday night. If I…
- Memorial Day and the other war by: Steve
  June 1, 2010, 10:45
  Iraq, Afghanistan...pretty easy to find out how many lives have been lost, sacrifices made in these conflicts. But what about the other war most veterans and…
- 31 Days of ALS...Day 9 by: Steve
  May 11, 2010, 20:38
  For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS.…
- Who needs a "Teeter Hangups".... by: Steve
  April 23, 2010, 21:10
  ....when you're in a Permobil power chair? Here's the story... I believe most anyone in a power chair can relate to this, whether you have the tilt/recline…
- Thank you Steve's Striders! by: Steve
  April 11, 2010, 19:23
  Hard to believe, but another ALS walk has come and gone, and although there were around 100 more people than last year's 600+, we only raised about half the…
- ALS Walk! by: Steve
  March 10, 2010, 11:00
  Dear Friends, It's time once again to dust off your walking shoes and join me as a member of my walk team, "Steve's Striders" in our quest to help find a…
- THANK YOU LORD!!! by: Steve
  January 16, 2010, 10:17
  It's been one of those weeks. Started feeling a little throat irritation Tuesday night. Not too bothersome Wednesday, but by the time Thursday morning came,…
- A New Beginning by: Steve
  January 10, 2010, 11:22
  Just as the days begin to grow longer, as sure as the morning dew on a cool Carolina morning, hope springs forth from this amazing new love sent from the…
- Sunday morning stroll... by: Steve
  January 5, 2010, 10:41
  ...through the ALS jungle. Why is my tail-bone hurting? Less cushion back there? Need more air in my roho cushion? Where's the morning headache coming from?…
- ALS Circus, clown-free by: Steve
  August 26, 2009, 23:24
  What? Not a "Bucky fan"? Me either, but anything for the cause... I figured I better get Sunday's excitement documented before the next act in the ALS…
Category: Change log (6)
- What a long strange trip... by: Steve
  August 22, 2010, 11:25
  This past week has been nothing short of interesting to say the least. But what's life if not completely the unexpected? Someone once quoted that "Life is what…
- Dog Days by: Steve
  August 3, 2010, 21:22
  Maura and I just returned from walking Pepper. Love the evenings when the air cools and the sun has set. Ever wonder why people say "the dog days of summer"?…
- Mind...AT EASE! by: Steve
  July 22, 2010, 23:33
  This is my way of putting my mind at ease, spilling the web of brain activity into my blog through a scramble of mouse gestures on my laptray, via Dasher.…
- Changelog, June update by: Steve
  June 18, 2010, 12:54
  Had a great time attending Hillary's graduation last weekend; especially getting to meet much of Cindy's extended family at the grad party Friday night. If I…
- Outside-in by: Steve
  October 11, 2009, 18:09
  Before I get sucked even further into "distractionville", I thought I should write a few lines while my head is full of original thought instead of the daily…
- Changes ahead... by: Steve
  September 16, 2009, 23:00
  Here I am, another night coming to a close, and I'm nowhere near getting the backlog (50+) of links I've accumulated posted to the site. You may know, if…
Category: van (1)
- Wheelchair van for sale by: Steve
  August 13, 2010, 11:06
  2008 Dodge Caravan SXT, silver- 3.8 V6; AMFM CD MP3 radio, power everything including rear & side doors. EXCELLENT condition the rear load ramp itself is…

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