Join me at patientslikeme for the most complete picture of how I'm doing with ALS. View rate of progression, treatments, meds, equipment and other relevant info.
You can tell from the badge that my arms are the most affected by
ALS, with the rest of my body...speech, swallowing, neck weakness,
down my trunk, my breathing, and then right down my legs...all in a
race for a close second.
This is my ALS Functional Rating Scale(FRS) history since diagnosis. This scale is utilized for tracking disease progression.
My current FRS score is 9, the max is