Iraq, Afghanistan…pretty easy to find out how many lives have been lost, sacrifices made in these conflicts. But what about the other war most veterans and their families are unaware of? There’s no mobilization, no training for it, nothing can be done to prepare, no immunization, no p-tabs, and no weapon has been created to [...]
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For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS. Although many of the difficulties, thoughts and complications addressed here are based on my personal [...] For the month of May, ALS Awareness month, I’ll be doing my best to chronicle what it’s like to have, live with or care for someone with ALS. This is not necessarily my story of life with ALS, but it could be yours, in the blink of an eye…or, the twitch of a muscle. Day 1 Again, [...] I thought this video was quite fitting for Veteran’s Day…enough said. Cold fall morning here in NC, mid-40s when I woke. Seems like yesterday I was sleeping in shorts and t-shirt. Now I don’t dare be out of the bed without socks and long sleeves. Those of you with the normal amount of muscle mass won’t realize how much body heat those muscles provide. I do [...] Ran across this youtube video on facebook. It does a good job of putting the viewer’s imagination to work. I have a few more lines to add: Imagine… giving up your driver’s license for good, before age is an issue People are constantly saying they “can’t imagine what it must be like” to have ALS. Or “I couldn’t walk in your shoes” etc. That being said, a friend once pointed something out years ago that I’d never before considered: that many people will say they could never _________. Fill in the blank with your choice: [...] Remember this tv commercial? I think anyone in the USA older than 35 or so will easily recognize it. Pretty outdated right? Now check out this video. Sarah Ezekiel is a friend of mine in the UK with ALS, but it’s called “Motor Neuron Disease” over there. Sarah’s video is pretty controversial over there, even received [...]  Because I have only limited functional use of one hand, I use Dasher, as shown here, to type without a keyboard, only a mouse. Great for loss of use of one hand, even if there's no fine motor control in your better hand. Also adaptable for eyegaze and head-mouse use. Give it a try! I supplement Dasher with an on-screen keyboard called Skeleton Key, created by a PALS, Dov Wisebrod.
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