Wrapping up the month of writing on a “day in the life”, I think one thing is pretty obvious: as long as I’m able, and at most every opportunity, I’ll continue to tear myself away from this laptop and enjoy the life I have left. It’s that simple. What was once a “day-trip”, with ALS [...]
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 Level 1 Squirrel Emergency! PANIC!  |
For the month of May, ALS Awareness month, I’m doing my best to chronicle what it’s like to have, live with or care for someone with ALS. Although many of the difficulties, thoughts and complications addressed here are based on [...] Plenty new terminology around this “White house” these days, especially for Cindy, Maura and the caregivers. Received my Dynavox Eyemax eyegaze-controlled computer, sort of the boy scout knife of communication devices for PALS and others who have lost the means to communicate as well as the use of their hands, or expect to. I’m not [...]  Because I have only limited functional use of one hand, I use Dasher, as shown here, to type without a keyboard, only a mouse. Great for loss of use of one hand, even if there's no fine motor control in your better hand. Also adaptable for eyegaze and head-mouse use. Give it a try! I supplement Dasher with an on-screen keyboard called Skeleton Key, created by a PALS, Dov Wisebrod.
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