Had a great time attending Hillary’s graduation last weekend; especially getting to meet much of Cindy’s extended family at the grad party Friday night. If I were given the chance to select a family of in-laws, I honestly believe I couldn’t have done any better. I’m a very lucky man to have such a loving, [...]
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Wrapping up the month of writing on a “day in the life”, I think one thing is pretty obvious: as long as I’m able, and at most every opportunity, I’ll continue to tear myself away from this laptop and enjoy the life I have left. It’s that simple. What was once a “day-trip”, with ALS [...] ….when you’re in a Permobil power chair? Here’s the story… I believe most anyone in a power chair can relate to this, whether you have the tilt/recline functions or not. Last weekend, I’d just finished being dressed, and needed to scoot back in my chair. Cindy had just put lotion on the soles of my feet, [...] …through the ALS jungle. Why is my tail-bone hurting? Less cushion back there? Need more air in my roho cushion? Where’s the morning headache coming from? Is the bipap no longer sufficient for proper respiration? (GULP!) How long will I be able to effectively use my chair’s foot control without putting anymore holes or marks on [...] If you know me, you know I enjoy adapting common, every day objects to make my life with ALS easier to tolerate, and God knows we need all the help we can get. Secondly, I also enjoy a good laugh, even those uncontrollable, an effect of ALS on the mind, the “pseudo-bulbar affect”. This video [...] So let me get this straight: a team of scientists, using their brains, build a computer interface (artificial brain) to guide wheelchairs, ) through the user’s brain)… Confused? Who cares, but what an awesome use of technology for PALS! This isn’t the first thought-controlled chair attempt to come along, but competition is great for [...]  Because I have only limited functional use of one hand, I use Dasher, as shown here, to type without a keyboard, only a mouse. Great for loss of use of one hand, even if there's no fine motor control in your better hand. Also adaptable for eyegaze and head-mouse use. Give it a try! I supplement Dasher with an on-screen keyboard called Skeleton Key, created by a PALS, Dov Wisebrod.
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